Past Events 2015
Barcelona, Spain, November 13-14, 2015, NBIA Family Conference of ENACH Asociación
Patient organization and NBIA Alliance partner ENACH Asociación, Organization of the First NBIA Family Conference in Barcelona
Thomas Klopstock (LMU), Susan Hayflick (OHSU), Angelika Klucken (HoBa), Holger Prokisch (TUM-MED), Ody Sibon (UMCG), Gregor Kosec (Acies Bio), Valeria Tiranti (FINCB), Talks at the TIRCON Final Conference in Munich
Susan Hayflick, Penny Hogarth (OHSU), Valeria Tiranti, Barbara Garavaglia, Nardo Nardocci (FINCB), Angelika Klucken (HoBa), Patricia Wood (NBIADA), Talks at the 1st
NBIA Family Conference in Italy organized by NBIA Alliance member
AISNAF
Düsseldorf, Germany, September 23-26, 2015, at DGN Congress 2015
HoBa, Information booth at the DGN Congress 2015 of the German Society for Neurology in Düsseldorf
Valeria Tiranti (FINCB), Talk on "Membrane modelling and phospholipids release I: Disorders with brain iron accumulation (PLA2G6, Fatty acid hydroxylase, PKAN, CoA synthase)" at the Meeting of Recordati Rare Diseases - Foundation d'entreprise on "Classification and diagnostic approach of IEM affecting the synthesis and remodelling of complex lipids"
Tomasz Kmiec (CMHI), Lecture and poster presentation; Angelika Klucken (HoBa), Poster presentation at the 11th European Paediatric Neurology Society Congress 2015 in Vienna
NBIADA, Organization of the 8th International Family Conference with talks of TIRCON partners Allison Gregory (OHSU), Penny Hogarth (OHSU), Jennifer Ferguson (CHRCO), Susan Hayflick (OHSU) and Ody Sibon (UMCG)
Susan Hayflick (OHSU), Talk on "Pathogenesis and phenotypes in iron accumulation disorders: Can there be a united view of NBIA?" at the 3rd International Conference on Knowledge Gaps in Parkinson's disease and other movement disorders in Toronto
Pittsburgh, Pennsylvania, USA, May, at Neuroscience Grand Rounds
Susan Hayflick (OHSU), Lecture on NBIA at the Neuroscience Grand Rounds at the Children's Hospital of Pittsburgh
Susan Hayflick (OHSU), Talk on "The Role of Iron Accumulation in Neurodegeneration" at the ACMG Annual Clinical Genetics Meeting in Salt Lake City
BayFOR, Information booth at the 9th International Congress "Forum Life Science" on recent developments and scientific results in pharma development, food and nutrition as well as industrial biotechnology
Portland, USA, February 25, 2015, at Department of Molecular and Medical Genetics Seminar
Caleb Rogers (OHSU), Talk on "NBIA: Diagnostics Tools and Our Experiences with Exome Sequencing" at Department of Molecular and Medical Genetics Seminar, Oregon Health & Science University
Susan Hayflick (OHSU), Ivan Karin (LMU), Nardo Nardocci (FINCB), Luisa Chiapparini (FINCB), Talks and poster presentation at the 4th International Symposium on Paediatric Movement Disorders